“Has your child has been diagnosed with: autism attention deficit disorder down syndrome cerebral palsy developmental delays dyslexia a vision or ...”

Jul

Summary of 4th disability support group meeting

“Here's a summary of the fourth disability support group meeting held at SHE building Seminar ...”

Forum on Disability invitation

“Date: 29th Tuesday, July 2008 Time: 09:00am - 14:30pm Venue: STELCO Seminar Room, Mal”

Yafaau, Samiya and me at Social workers training workshop

“Yafaau, Samiya and I will be at Ministry of Gender and Family's Social workers training ...”

Report on the Forum on Disability meeting published on MVdisability

“This is a report by CFPA of Min. of Gender and Family on the "Forum ...”

Aug

Help to Aisha - Meedhoweekly.com

Nov

My bro Akee's Triplets

Dec

Blog revamp in progress

“Yafaau's blog revamp in progress. Please visit later. If you are desperate to know how Yafaau ...”

2006

“3 years”

Jan

Happy New Year 2006

3 Years Birthday

Yafaau's Passports

New Nestl

“Update: 19 January 2006It is noted that after starting the new type of NESTLɮ Stage ...”

2 months since convulsions stopped

“Its been 2 months today since Yafaau's convulsions stopped and Alhamdhu lillah, he havent had ...”

Moving places at home and in play

“We have observed that change is a great stimulator. Constantly, we try to keep the ...”

Mobile phone learning

“250 people aged 16-24 in the UK, Italy and Sweden used mobile phones to engage ...”

a cry for hope

“23 January 2006Yafaau wasn't sleepy last night so i played with him late midnight. Then ...”

new Hosting at Maldivesinfo.com

“new Hosting transfer in progress, it might take 24hrs minimumI hope to update blog when ...”

Blog update

“The new blog is at http://www.yafaau.info/blog you'll find further updates there. ”

2005

“2 years”

Feb

Yafaau has recovered from a bad fever and cold

“Yafaau has recovered from a bad fever and cold. There is a change in his ...”

May

Message sent from mobile number 9607776688

“A Message was received from the mobile number 9607776688 with the message:my messages from mobile. ...”

YAFAAU.ORG is not Yafaau's website anymore

“Unfortunately YAFAAU.ORG is not Yafaau's website anymore! It was re-registered by another party the same ...”

Yafaau.Org

“I think Yafaau.Org resembles as an organisation. Our website consists information about his condition. I ...”

Jun

Good to see Yafaau back online.

“Good to see Yafaau back online. Yafaau.info is great. ”

Jul

problem with logging in to the gallery

“There is a problem with logging in to the gallery. I'll try to sort out ...”

new book The Pathway to Wellness-How to help your brain injured child

“We have recieved the new book The Pathway to Wellness-How to help your brain injured ...”

Gallery login Update

“The problem with Gallery is still there, when loging in from the gallery takes you ...”

Aug

We came back on this 13th and I started going to office today

“We came back on this 13th and I started going to office today. Will try ...”

After the infant?s death in 2000, Beth Israel Deaconess Medical Center made a number of changes

Your Attitude is the Key in managing problems being a parent of a CP child

“Accept the child: You have to mentally prepare yourself to love and care for the ...”

Vadhoo trip, July August 2005:

FEVER of 103F

“Yafaau is admitted with a high fever of 103F. This monday morning Yafaau's throat ...”

Dishcarged 31082005. Aspiration Pneumonia+UTI

“Yafaau discharged today as his fever was not there now. He has been admitted in ...”

Sep

Huraa Picnic 2005

“I was informed Last night at a parent meeting in CARE Society that there would ...”

Huraa trip posts coming up soon...

“Huraa trip posts coming up soon... ”

Heaven's Very Special Child

“A meeting was held quite far from Earth, It's time again for another birth. Said the ...”

HURAA Trip by Maldives Inflight Catering and CARE Society

July August Vadhoo Trip 2005 photos uploaded at the gallery

“July August Vadhoo Trip 2005 photos uploaded at the gallery at http://www.yafaau.info/gallery ”

Oct

Check this article by M. Shaheeb at Haveeru about Hospitals

“http://www.haveeru.com.mv/?page=details&cat=cmwlok&id=29914 ”

CARE Society Action Plan Review meeting photos uploaded.

“CARE Society Action Plan Review meeting photos uploaded. Ramazan Mubarak. ”

A Dialysis units in IGMH

“A total of 7 units is now available. There was 35 ppl registered to use ...”

CHOICES

“BY MARK CAMPBELL Choices can be long, they can be good to make, they can be bad to ...”

A Parent's Perspective

“by Cal Lambeth My daughter was born nine weeks prematurely after my two week stay in ...”

Shifana had a cesarean, its a BOY :)

“October 17 update: Photos uploaded to gallery see it at http://www.yafaau.info/gallery/details.php?image_id=347 and http://www.yafaau.info/gallery/details.php?image_id=348 This morning Shifana(my cousin) ...”

October EEG

EEG from IGMH

Neuro Surgeon, Dr Arumugam Mani

Who's gonna interpret the EEG?

Cerebra news/articles at Yafaau's forum

“I have got the permission from Cerebra(http://www.cerebra.org.uk) to publish articles that could be useful for ...”

Nov

Back to Care Society for PT

“After having frequent visits to IGMH Physio, we came to know that they really haven't ...”

Stress techniques for parents

“by Dr. Ann Edworthy Stress occurs when we feel that we cannot cope with a situation. ...”

On the Occasion of the 37th Republic Day Nov 11 2005

“First, I would like to take this opportunity to wish all our visitors on this ...”

No convulsions since November 12th

“We are very glad that Yafaau?s convulsions have ceased! We use a very strict schedule ...”

Yeah, right!

Dec

Precautionary tests/Yafaau's interaction/New photos

“Precautionary tests/Yafaau's interaction/New photos Last week Yafaau had fever and was very moody and was not ...”

Marking World Disablity day 2005

MR Vaccination campaign underway

“Department of public health website states and I quote "Facts and figures on health are ...”

"Khaassa Ehee", radio programme by VOM.

“"Khaassa Ehee", radio programme by VOM. A new radio programme by the national radio, Voice Of ...”

I would like to point out the great efforts by Dr Niyaf in his blog

“I would like to point out the great efforts by Dr Niyaf in his blog ...”

MR Vaccination campaign in Maldives

Adaptive toys

Adaptive Toys continued...

“Adaptive Toys continued... The Softwares below are compatible with Nokia Symbian Series 60 phones but there ...”

Nov 20 Doc consultation

“We consulted because Yafaau had some discharge in his right ear. It turned out to ...”

2004

“1 year”

Jan

Happy new year to all

“Happy new year to all. ”

Last night Yafaau was a bit moody

“Last night Yafaau was a bit moody and didn't sleep well. It seems that the ...”

A year old!

“Its Yafaau's birthday dho. He is now a Year old! We are very happy that ...”

Changed physiotherapy time because Yafaau is sleeping

“Changed physiotherapy time because Yafaau is sleeping everyday when we go to do physio. ...”

10-month-old infant dies while being anesthetized

“http://www.haveeru.com.mv/?view=2&id=2735 ”

Our 5 Year Anniversary : )

“Our 5 Year Anniversary : ) ”

Some pics are available at msngroups

“some pics are available at http://groups.msn.com/LifeofYafaau ”

Yafaau's Photo Slideshow

“Yafaau's Photo Slideshow ”

Feb

childraise.com

“childraise.com has this page about management of CP children”

There's good news, the special seating for Yafaau had been approved by theemuge.

What is a Seizure?

“What is a Seizure? This is a good link to know about seizures. ”

I've added a new feature in the blog, "Comment This!"

“I've added a new feature in the blog, "Comment This!" Now you can comment on ...”

Mar

Domain, Yafaau dot org

“I'm a little busy right now but YAFAAU.ORG is online with the kind help from ...”

Yafaau is sick, this morning he was coughing

“Yafaau is sick, this morning he was coughing. SIL just called and she said Yafaau ...”

Yafaau's fever is better today than last night.

“Yafaau's fever is better today than last night. There is a viral fever around Male' ...”

Sorry for lack of updates. Yafaau's not having fever and is back to normal.

“Sorry for lack of updates. Yafaau's not having fever and is back to normal. ...”

Special Seat almost finished

Testing a new talk forum for Yafaau.Org

“Testing a new talk forum for Yafaau.Org TestForum Update: 20090911 We used to have a forum but it ...”

Ukrainian Youth Association (CYM) - Sydney

“Ukrainian Youth Association (CYM) -- Sydney "'Podruha Christina Parasyn is enthusiastic, committed, sociable and interested in ...”

Overview: Infants and Young Children with Disabilities

“Overview: Infants and Young Children with Disabilities By Barbara Kolucki, ECCD and Children's Media Consultant to ...”

Apr

Yafaau's special seat is now at home

“Yafaau's special seat is now home. Day by day we are increasing the number of ...”

May

My little Yafaau.

This evening Yafaau is a little bit moody

“This evening Yafaau is a little bit moody, mainly because he had got a temp. ...”

Yafaau's fever was too high that we went to hospital

“Yafaau's fever was too high that we went to hospital. When we took his temp ...”

Yafaau is recovering from fever

“Yafaau is recovering from fever. He didn't sleep these days so is spending most of ...”

Jun

Clonazepam Dose Increased

“Last night, after discussing with doctor Yafaau's Clonazepan dose is increased to 1tab BD. His ...”

Jul

Convulsions Chart for May and June 2004 Uploaded

“Recently Updated links Convulsions Chart for May and June 2004 Uploaded ”

Aug

I'm a bit busy at office

“I'm a bit busy at office, but sqeeze some time to finish the july convulsions ...”

Convulsions chart

“Convulsions chart for last month uploaded see chart ”

These days Yafaau had been quite uncomfortable with food

“These days Yafaau had been quite uncomfortable with food, We have started giving him some ...”

I got all the results from the tests today

“I got all the results from the tests today, Insha Allah we will see our ...”

Sep

Sorry for not blogging but there is an update on Yafaau's Forum

“Sorry for not blogging but there is an update on Yafaau's Forum at http://forum.yafaau.org/viewtopic.php?t=47 I ...”

Oct

BLOGGER IS BACK ONLINE

“After some days the Yafaau's blog is back online. I hope to keep updates at ...”

Nov

This week we have noticed Yafaau responding

“This week we have noticed Yafaau responding more to our voice, he smiles bashfully while ...”

HOW CAN I HELP?

“How can I help? When a child is diagnosed with cerebral palsy, the parents face many ...”

Last night I had to work late because of Nov 11

“Last night I had to work late because of Nov 11 decorations when Samiya rang ...”

ADMITTED: High Fever, suspected aspiration... again!

“01:40AM We decided to goto casualty because of the long holidays in line. After seeing Yafaau, ...”

Discharged EID MUBARAK. 14 Nov 2004

“Yafaau discharged after 3 days. He didn't show signs of aspiration but had fever for ...”

Yafaau's Weight

“We are worrying quite a lot about Yafaau's weight. He hasn't gained enough. He's only ...”

Dec

Special Seat adjustment

“Insha allah this month we are going to re-assess the Special seat and adjust some ...”

Stridor followed by coughing and fever 13122004

“Yesterday we noticed Yafaau was having some kind of discomfort and was not feeling as ...”

The Earthquake that stunned Maldives 26 dec

“http://www.maldivianunderground.net/tsunami/ Read the article and photos (c) Jawish Hameed. Since 25th Yafaau has had a cold and ...”

2003

“Birth year”

Jan

My first baby boy:

“He was born by vacuum extraction, a difficult 2nd stage delivery. primi mother. Apgar score ...”

He had his first seizure:

“Within 24hrs of birth baby developed generalized tonic seizures. Diagnosis was thus revised to HIE ...”

SIL saw baby after long night:

“After recovering well and wanting to see how our little fellow was doing SIL wanted ...”

Sympathetic eyes:

“The first time we saw him open his eyes and heard his cry at the ...”

Apnea!

“Baby developed short periods of Apnea. On 3rd and 4th DOL baby developed short periods ...”

CT Scan:

“Had his CT. On 5th DOL a CT Scan was taken and its impression was ...”

In room with mommy:

“Discharged from nursery to our room with NG tube. We gave EBM. ”

First dose of vaccines:

“BCG,Polio, HEP-B were given today. Normally these vaccines are given just after birth.. ”

Feb

Discharged:

“Both mom and baby discharged frm hosp. Still with the NG tube. ”

Vaccines:

“Second dose of hep-B was given today. We couldn't give DPT because it had Pertosis. ...”

Mar

Colic!?:

“Noted exessive crying and pulling of legs so showed to OPD. Admitted in nursery for ...”

Discharged after Colic:

“Discharged saying it was a mild colic abdominal pain. ”

We are formally seeking professional input to this case study

“We are formally seeking professional input to this case study. This webpage contains detailed ...”

My Sick Newborn

“Asphyxia and Hypoxic-Ischemic Encephalopathy ----------------------------------------------------------------------- What is asphyxia? Asphyxia is when there is less than normal oxygen delivered ...”

Saw his Smile:

“Today marks a milestone in Yafaau's life as he smiled to Samiya, She was trying ...”

Today marks a milestone in Yafaau's life as he smiled to Samiya

“Today marks a milestone in Yafaau's life as he smiled to Samiya, She was trying ...”

Removed NG Tube:

“We could give him sips of water, Expressed breast milk from spoon and we were ...”

DISCHARGE SUMMARY

“Baby was born by vacuum extraction on 04-Jan-2003 to a 26yr old primi mother with ...”

Colic:

“Day before yesterday night he had severe colic discomfort and showed to a pediatrician and ...”

Day before yesterday night he had severe colic

“Day before yesterday night he had severe colic discomfort and showed to a pediatrician and ...”

Thanks to Dr Kunju for his professional advice

“Thanks to Dr Kunju for his professional advice and Jayantha Peiris for the information on ...”

Stopped phenobarbitone:

“Today Doctor advised to stop Phenobarbitone, which had mixed feelings for us. And the following ...”

on the 29th of this month Doctor advised to stop Phenobarbitone

“on the 29th of this month Doctor advised to stop Phenobarbitone, which had mixed feelings ...”

Apr

Trip to Sri lanka:

“Traveled to Sri Lanka ”

Admitted in Apollo:

“We showed to Dr Priyanthi Molligoda (info) As we were explaining about the kinds of ...”

Took his first EEG:

“It seems that it was not highly abnormal. The neurologist wrote in the report that ...”

MRI:

“MRI showed Bilateral thalamic and basal ganglia hemorrhage. Link: MRI ”

Colic pain or Salaam Attacks?

“Things are really bad. The colic pain Doctors had diagnosed as in IGMH turns out ...”

Things are really bad. The colic pain Doctors had diagnosed

“Things are really bad. The colic pain Doctors had diagnosed as in IGMH turns out ...”

We are in Apollo Hospital Colombo

Vaccines, DT and HiB

“DT and Hib ”

Second EEG no hypsarrythmia:

“We did another EEG but were very happy that there was no hypsarrythmia on either ...”

Discharge, Apollo Hosp Colombo:

“Discharged from Apollo. We are back from Hospital, All the tests are finished for the ...”

We are back from Hospital

“We are back from Hospital, All the tests are finished for the time being. "EEG ...”

Discharge Summary

“"Discharge Summary: Continued to have salaam fits chartered together several times a day and especially occurring ...”

Discharge Summary:

“Discharge Summary: Continued to have salaam fits chartered together several times a day and especially occuring ...”

We're back home

“I'm back. I'll work on the uploading process as soon as possible. ”

I'm back. I'll work on the uploading process

“I'm back. I'll work on the uploading process as soon as possible ”

Yafaau visits Grandparents:

“As soon as we came back from Sri Lanka, SIL's parents wanted to see Baby ...”

SIL and Baby Yafaau visits R. Vadhoo:

“Baby Yafaau and SIL are doing okay for now. The fits seem to be less ...”

Baby Yafaau and SIL are doing okay for now

“Baby Yafaau and SIL are doing okay for now. The fits seem to be ...”

May

Heavy breathing:

“Yesterday, evening as SIL was holding Yafaau, he started to breath heavily and he seemed ...”

MRI Scanned

“MRI Images are scanned but not ready for web as each one is about 1.40mb. ...”

Yesterday, 24th May, evening as SIL was holding Yafaau

“Yesterday, 24th May, evening as SIL was holding Yafaau, he started to breath heavily and ...”

EEG online

“EEG is online and you can view the links here Link: All EEG's ”

While I was browsing I saw this Article by Marcio Sotero de Menezes, MD, Assistant

“Professor, Department of Neurology, Division of Pediatric Neurology, Children's Hospital of Seattle, University of Washington Background: The ...”

MRI and CT online

“I just uploaded the MRI Images (T1W and T2W) and CT scan to the site. ...”

SITE UPDATED

“Main site:- http://www26.brinkster.com/yaie direct link to CT:- http://www26.brinkster.com/yaie/img/CTSlices/CT.htm direct link to MRI:- http://www26.brinkster.com/yaie/mriscan.htm direct link to EEG:- http://www26.brinkster.com/yaie/eeg.htm 12 ...”

I just uploaded the MRI Images (T1W and T2W)

“I just uploaded the MRI Images (T1W and T2W) and CT scan to the site. ...”

Jun

SIL and Baby Yafaau are on their wy back to Mal?.

“SIL and Baby Yafaau are on their wy back to Mal?. Baby Yafaau is still ...”

Convulsions reduced.

“Average approx. less than 10 times. ”

Jul

Is it really getting less?

“Yes it did but unfortunately had increased today. He had 12 today. ”

Increasing

“ The convulsions are increasing quite rapidly and we showed to Dr Afeef. He did not ...”

Aug

Baby's condition is begining to get worse.

“Baby's condition is begining to get worse. His convulsions are more and its intensity is ...”

Average convulsions above 20:

“The average convulsions per day had been increased and we are beginning to worry yesterday ...”

Last preparations

Luckily we are able to go back to Sri Lanka

“Luckily we are able to go back to Sri Lanka as we do not have ...”

Back in Sri Lanka

“It was a weekend and the trip was tiring so we got some good sleep. ”

Sep

Unfortunately brinksters account vanishe into thin air!!

“Unfortunately brinksters account vanishe into thin air!! And there is no response from brinkster team. ...”

Oct

A lot happened recently but as for the tight budget and time

“A lot happened recently but as for the tight budget and time I'm unable to ...”

Yafaau's site

“Yafaau's site Yafaau's site at Maldivesinfo.com status: OK ”

A bit sleepy back in Mal?. hehe.

“A bit sleepy back in Mal?. hehe. Still sleeping and SIL's complaining about Yafaau's food ...”

Everyone is asking..

“Everyone is asking.. Could Baby Yafaau's cerebral palsy be caused by a medical malpractice? coming soon... ”

Nov

Update 20031114

“Update: We did show the reports to this new doctor in town, Dr. Kim, Neurologist. from ...”

Typical Birth trauma cases:

“For a child born with cerebral palsy. In this case, the fetal heart rate had ...”

Yafaau's toothing had started earlier

“Yafaau's toothing had started earlier and he is doing very funny movements to his mouth. ...”

DT & Oral Polio third dose

Aathika

“Aathika Today we showed and talked about Yafaau to Aathika, the physiotherapist. ”

After intense search and hard work

“After intense search and hard work, Baby Yafaau's Guestbook is online once again. Click here to ...”

Dec

Anyway, Our sessions of Physiotherapy at IGMH

“Anyway, Our sessions of Physiotherapy at IGMH is quite helpful in raising Yafaau. We are ...”

Yafaau's is quite active this week

“Yafaau's is quite active this week, from what we have noticed is that he gets ...”

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