Yafaau's blog

Developmental progress of a child with Cerebral Palsy in Maldives

Parent Participation Improving services for the disabled children parts 1 & 2

IMG_0365Parents of children with special needs and young people care passionately about the services they receive. Parents have strong views on the services they get; whether govt. offices are working together and most of all whether the needs of their child are truly being met. All services are now expected to consult with parents and involve them in planning and development. But the concept of ‘parent participation’ means different things to different people. How do we ensure that parent participation is effective and meaningful for parents?

We(Ifham, Nelfa, Jeroen frm Handicap Intl. and I) are trying to form a support group consisting of parents of children with special needs, a young group of children with hearing impairment and a handful of relatives to address these issues and to help and support the many parents and professionals who want to work together to improve services.

Almost everyone reading this post would understand that parent participation is a successful way of providing better services. Evidence shows that parents who are involved in planning and developing services are more contented and empowered parents.

I hope that our meetings will offer an array of practical examples and suggestions to help professionals and parents become effective participators. It also offers an opportunity to welcome and reflect on a changing culture within the public services that now places such importance on the input of service users in our little but wonderful country.

Inviting parents to participate in the planning and delivery of services poses many challenges for govt. officals. Yet it is only through working with us parents that they understand how to deliver the services we need. Parents observe and experience the system at close quarters and this knowledge and expertise is unique.

I believe that good participation leads to empowered parents, empowered children and empowered services. This is undoubtedly a win-win situation for childen with special needs, their families and the professionals who work with them – what more could we want?\r\n4/28/2008 4:17:40 PM
Convention on the Rights of Persons with Disabilities needs dhivehi translation

The Convention on the Rights of Persons with Disabilities or CRPD which Maldives signed October last year needs to be translated into dhivehi. Social Security seems to have given an information session 11am today so sorry for my late post(but you still can submit your proposals). The document, as what the notice says consists of 31 pages(here’s its articles). And a proposal needs to be submitted before 5th May 2008, 11:00am.

I feel its important for NGO’’s like CARE Society or Open Society Association to play a part of the translation. I guess(im not sure) Social Security would send drafts to them. Collaboration within interested parties is something we are missing in our community. Anyways, I hope this translation procedure goes well and we would be able to see it before the end of this year! And getting the document could be another issue as there is no website of Social Security department which we could get it downloaded easily!

The Convention on the Rights of Persons with a disability consists of 50 Articles which is adopted by the General Assembly resolution 61/106 of 13 December 2006 which are;

  1. Purpose
  2. Definitions
  3. General Principles
  4. General Obligations
  5. Equality and non-discrimination
  6. Women with disabilities
  7. Children with disabilities
  8. Awareness-raising
  9. Accessibility
  10. Right to life
  11. Situation of risk and humanitarian emergencies
  12. Equal recognition before the law
  13. Access to justice
  14. Liberty and security of person
  15. Freedom from torture or cruel, inhuman or degrading treatment or punishment
  16. Freedom from exploitation, violence and abuse
  17. Protecting integrity of person
  18. Liberty of movement and nationality
  19. Living independently and being included in the community
  20. Personal mobility
  21. Freedom of expression and opinion, and access to information
  22. Respect for privacy
  23. Respect for home and the family
  24. Education
  25. Health
  26. Habilitation and rehabilitation
  27. Work and employment
  28. Adequate standard of living and social protection
  29. Participation in political and public life
  30. Participation in cultural life, recreation, leisure and sport
  31. Statistics and data collection
  32. International cooperation
  33. National implementation and monitoring
  34. Committee on the Rights of Persons with Disabilities
  35. Reports by State Parties
  36. Consideration of Reports
  37. Cooperation between States Parties and the Committee
  38. Relationship of the Committee with other bodies
  39. Report of the comminttee
  40. Conferrence of the States PArties
  41. Depositary
  42. Signature
  43. Consent to be bound
  44. Regional intergration organizations
  45. Entry into force
  46. Reservations
  47. Ammendments
  48. Denunciation
  49. Accessible format
  50. Authentic texts

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