Cerebra news/articles at Yafaau’s forum
I have got the permission from Cerebra(http://www.cerebra.org.uk) to publish articles that could be useful for the Maldivian Cerebral Palsy comminity from their PARNET bulletin. You will find articles at http://forum.yafaau.info/index.php?c=6 Articles include: Research on ‘Protecting premature babies, IVF and low birthweight’ etc. Parent advice for therapists and case managers First, last and always, operate with empathy (this was mentioned by dozens of respondents); Practice ?walking in the shoes? of the family or the individual;...
read moreWho’s gonna interpret the EEG?
I was asked by Dr. Ismail to give an EEG a try to see if there was any changes and asked me to consult a new doctor at IGMH whom he says can interpret EEG. I got the EEG today evening and was informed that this doctor was on duty. I took an appointment(late appointments remained) rightaway and found out that the doctor was infact a Neuro Surgeon. Well anyway, its worth showing him and maybe know what his advices would be. It turned out as I thought, he was quick to admit that it wasn’t his field and that it was a Paediatric...
read moreNeuro Surgeon, Dr Arumugam Mani
He noted Yafaay’s severe spasticity of neck and limbs as tension dystonia. After close observation he recommended to try Beclofen for spasticity. Also pointed out the contracture of Yafaau’s ankles. His opinions were physiotherapy, special seat and splints… He did mention about the convulsions that the Video I showed was actual fit but some movements were actually involuntary spasms. Popularity:...
read moreEEG from IGMH
With the failed attempt to do an EEG last thursday we took another appointment on sunday. We went to IGMH early in the morning as EEG technician(John) advised, because it would be easy to give him sedation and would sleep early to save more time. After sedation we were not able to put him on to sleep as easy as we thought he would be. Just as he was about to get asleep, the convulsion started! he had about 9 of them in front of John who was in shock. He was infact very sad and showed us his sympathy. After 9 high repetition of the convulsions,...
read moreOctober EEG
We’ve started going to IGMH Physiotherapy dept. to re-adjust Yafaau’s Special seat So we have interrupted going to CARE Society for PT. Asessment would take place when IGMH PT gets familiar with Yafaau. Earlier his asessment took more than a month and we had to do a visit 5 days a week. We dont know how many days this asessment will take thats the main reason for interrupting CARE PT. Our doctor asked us to do an EEG due to the changes in the convulsions form. We almost did an EEG thursday, Yafaau woke up after the EEG...
read moreShifana had a cesarean, its a BOY :)
October 17 update: Photos uploaded to gallery see it at http://www.yafaau.info/gallery/details.php?image_id=347 and http://www.yafaau.info/gallery/details.php?image_id=348 This morning Shifana(my cousin) went through the operating room and came out with flying colors, blue that is. It was a lovely boy, looks just like her. I do have a pic but I’ll post it on the gallery later tomorrow as I have to go home now, SIL’s waiting and I have to go babysit Yafaau to help SIL prepare for the breakfast. Popularity:...
read moreA Parent’s Perspective
by Cal Lambeth My daughter was born nine weeks prematurely after my two week stay in the hospital with ruptured membranes. She had to be resuscitated in the delivery room. She had no breathing difficulties and was soon transferred out of the intensive care nursery. Five weeks later, still a month ahead of schedule, we took her home. I remember that time as a difficult one of adjustment. She was our first baby. Things hadn’t gone according to”script”. I felt both she and I had been cheated out of those important nine weeks in...
read moreCHOICES
BY MARK CAMPBELL Choices can be long, they can be good to make, they can be bad to make, they can be hard to make. Once you make a decision, you have to stick with it and deal with it Because say you make a mistake You have to deal with it as it comes. You’re the only one who has to deal with it. It’s the same thing in school in school, in school. The same thing all over again. If your teacher asks you to bring your keyboard, your keyboard, your keyboard and you don’t, you’ll be in trouble, in trouble, in trouble The...
read moreA Dialysis units in IGMH
A total of 7 units is now available. There was 35 ppl registered to use 3 dialysis units earlier so hopefully this achievement is a long awaited dream of the locals. Popularity: 1%
read moreCARE Society Action Plan Review meeting photos uploaded.
CARE Society Action Plan Review meeting photos uploaded. Ramazan Mubarak. Popularity: 1%
read moreWebsite Reputation
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